It's been another two weeks since I've posted an update, and I'm happy to say that things are going well. My mom flew back home on Saturday April 14th, and on Monday the 16th Rob's parents came and picked up the boys again. I did fine with Micah for the week and the boys came back Thursday afternoon.
Friday the 20th was my first day with all three kids by myself and it was great. When Rob came home I told him that I felt like it was a normal day. I wasn't overly tired when Rob came home, and I was actually feeling pretty good. So we were hopeful that I would be able to handle the next week by myself as well.
The week of April 23 - 27th all three kids were with me all week and we did fine. I even took all 3 kids with me to my hematologist appointment on Thursday and then grocery shopping. I am so glad that I am starting to feel normal again.
As far as the medical stuff...the rheumatologist said that my blood work looked fine, which can be interpreted as a good thing and a bad thing. Good because nothing else has popped up, but bad because we still don't have any answers. He is still waiting for results for the blood work that he sent off to Texas, so maybe we will get some answers there. He said that the only medication he wants to keep me on is the coumadin (blood thinner), so he started weaning me off of everything else. My steroid dosage has gone from 40 mg to 30, 20, 15, and now this week I'm taking 10. Next week I will start taking 5 mg a day until I see him again and then we will reevaluate that as well. He changed my coreg (heart medication) to once a day instead of twice. So far I haven't noticed any changes as I've started to come off the meds, so we're hoping that's a good sign that they aren't necessary any more.
I've been to the hematologist twice and my INR level has stayed the same, so my coumadin dosage has stayed the same as well. If my levels stay regulated over the next two weeks then I can start going for INR checks monthly instead of weekly.
I have a nephrologist appointment this week and another INR level check at the hematologist, so I will update again later in the week.
Thanks again for all your prayers.
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Sara, I am so glad to hear that you are feeling better. We will continue to pray that things go well as you decrease your meds. If we can help in any way please let us know.
ReplyDeleteSara, I am so glad to hear that you are feeling better. We will continue to pray that things go well as you decrease your meds. If we can help in any way please let us know.
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